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Baby William
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Lizzie
Posted 2009-04-15 7:10 PM (#25064 - in reply to #24862)
Subject: RE: Baby William



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Location: Durham, CT

Ladies, thank you so much for the prayers. William had his appointment in Boston yesterday. I believe a good deal of the appointment was devoted to some counseling for Kerry and Scott regarding different scenarios that could occur. First, the doctors will not be able to make any definitive diagnosis until William is about 2 months old. He may have VLCAD deficiency which is very serious, however the doctors told Kerry and Scott they believe if William has this deficiency it will likely be in a milder form. It is also possible that he does not have the illness itself, but is a carrier of it. That's all I know at this point, but I'd really appreciate continued prayers for this beautiful baby. Our hope is that he is only a carrier.

Lizzie

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Gerda
Posted 2009-04-15 9:30 PM (#25067 - in reply to #24862)
Subject: Re: Baby William



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You got it, Lizzie! Prayers will continue for this sweetie and his family!

Gerda
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char77
Posted 2009-04-15 10:56 PM (#25069 - in reply to #24862)
Subject: Re: Baby William


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Lizzie~ the not-knowing-for-sure must be the hardest for them! I will definitely keep saying prayers for the family. Please keep us posted of any progress.
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sunshine
Posted 2009-04-16 12:37 AM (#25072 - in reply to #24862)
Subject: RE: Baby William


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Will keep William and family in my prayers.

Midge

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Jess
Posted 2009-04-16 2:25 PM (#25092 - in reply to #25072)
Subject: RE: Baby William



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Thoughts and prayers going out for them Ms. Lizzie!
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Lizzie
Posted 2009-04-21 5:49 PM (#25333 - in reply to #24862)
Subject: RE: Baby William



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Posts: 843
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Location: Durham, CT

Some tentative good news ladies! William's latest blood test results came back. The doctors have said not to get our hopes up too high, but the latest tests were normal! Of course the doctors will continue to follow his progress closely, and they say if he has two or three more tests that are normal they will have to assume the first was a fluke. We are sooooo grateful. Yes, we know he will still need his kidney operation when he is two months old, but the doctors have said that it is a simple procedure and his kidneys are totally fixable. So, keep the prayers coming girls. Looks like they've been doing a good job so far!

Thanks for your love for William

Lizzie

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buggalugs
Posted 2009-04-21 7:37 PM (#25338 - in reply to #25333)
Subject: RE: Baby William



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Oh Lizzie lots and lots of extra prayers going up , this is potentially wonderful news but we will except for our prayers.......

Jacqui

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Jess
Posted 2009-04-21 9:25 PM (#25346 - in reply to #25338)
Subject: RE: Baby William



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Location: Central Texas

Oh, too hard not to get hopes up!!

Thoughts and prayers still going up for baby William!

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Dorian
Posted 2009-04-22 8:38 AM (#25353 - in reply to #24862)
Subject: RE: Baby William



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Yah! that's fabulous Lizzie. Really hard not to get hopes up! Continued prayers going out.
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sara
Posted 2009-04-22 11:40 AM (#25372 - in reply to #24862)
Subject: Re: Baby William



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Posts: 740
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Location: Lamesa TX
OH boy! I hope hope hope this is the best news yet. (sorry, my hopes are already up)
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delia
Posted 2009-04-22 12:02 PM (#25379 - in reply to #25372)
Subject: Re: Baby William



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Oh, how wonderful, Lizzie!! Prayers continuing for the little man!
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